Postpartum Child

BORN ID	Data Element Name	Encounter
D0002	Baby's Sex	Healthy Babies Healthy Children (HBHC), Newborn Screening Ontario (NSO), Postpartum Child (PPC)
This variable is available for release but with restriction or approval from appropriate stakeholder. Data Definition: Indicate Sex of the baby on visual exam at birth Pick List Value: Female Male Ambiguous genitalia Unknown
D0021	Generic Comment	Antenatal General (AG), Birth Child (BC), Labour & Birth Mother (LBM), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC), Postpartum Mother (PPM)
BORN collects this variable but due to personal health information (PHI) or sensitivity it is not available for data request. Data Definition: Comment to capture details not identified in other data elements. Pick List Value:
D0024-1	Newborn Congenital Anomalies Identified	Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
Data Definition: Indication whether there were suspected or confirmed newborn congenital anomalies Pick List Value: None Suspected or Confirmed
D0024ICD	Newborn Congenital Anomalies Suspected	Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
Data Definition: Identify all suspected congenital anomalies. If a suspected congenital anomaly is later confirmed as not present, it should remain as suspected. Then None or any other confirmed anomalies should be entered in Congenital Anomalies Confirmed. Pick List Value: None Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Absent cavum septum pellucidum (CSP) Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Absent cerebellar vermis Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Acrania or Anencephaly Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Arachnoid cyst(s) Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Arnold Chiari Malformation Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Aqueductal stenosis Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Corpus Callosum - Agenesis (ACC) Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Corpus Callosum - Hypoplasia Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Dandy walker malformation/ variant (DWM) Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Encephalocele Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Enlarged cisterna magna Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Holoprosencephaly Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Hydrocephalus Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Hypotonia, unspecified Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Lissencephaly Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Macrocephaly Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Microcephaly Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Polymicrogyria Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Posterior fossa cyst Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Sacral agenesis Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Sacrococcygeal teratoma (SCT) Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Seizures Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Spina Bifida with hydrocephalus Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Spina Bifida without hydrocephalus Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Ventriculomegaly - Mild-Moderate (11-14.9 mm) Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Ventriculomegaly - Severe (>15 mm) Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Other - malformations of the nervous system Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Other - malformations of the brain Eye Anomalies \ Anophthalmos Eye Anomalies \ Congenital cataract Eye Anomalies \ Congenital glaucoma Eye Anomalies \ Microphthalmos Eye Anomalies \ Other - malformations of eye Ear, Face and Neck Anomalies \ Choanal atresia Ear, Face and Neck Anomalies \ Ears - Anotia Ear, Face and Neck Anomalies \ Ears - Microtia Ear, Face and Neck Anomalies \ Macroglossia Ear, Face and Neck Anomalies \ Micrognathia Ear, Face and Neck Anomalies \ Nose - Absent Ear, Face and Neck Anomalies \ Nose - Hypoplastic Ear, Face and Neck Anomalies \ Retrognathia Ear, Face and Neck Anomalies \ Other - malformations of ear Ear, Face and Neck Anomalies \ Other - malformations of the face and neck Oro-facial Clefts \ Cleft lip Oro-facial Clefts \ Cleft lip with cleft palate Oro-facial Clefts \ Cleft palate Oro-facial Clefts \ Pierre Robin Sequence Thorax Anomalies \ Bronchopulmonary sequestration (BPS) Thorax Anomalies \ Congenital high airway obstruction (CHAOS) Thorax Anomalies \ Cystic adenomatous malformation of lung (CCAM) Thorax Anomalies \ Diaphragmatic hernia (CDH) Thorax Anomalies \ Other - congenital malformations of lung Thorax Anomalies \ Other - malformations of the diaphragm Cardiovascular Anomalies \ Aortic arch - Double Cardiovascular Anomalies \ Aortic arch - Interrupted Cardiovascular Anomalies \ Aortic arch - Right Cardiovascular Anomalies \ Aortic atresia/Hypoplastic aortic arch Cardiovascular Anomalies \ Aortic valve stenosis Cardiovascular Anomalies \ Arrhythmia Cardiovascular Anomalies \ Atrial isomerism (heterotaxy) - Left Cardiovascular Anomalies \ Atrial isomerism (heterotaxy) - Right Cardiovascular Anomalies \ Atrial septal defect (ASD) Cardiovascular Anomalies \ Atrioventricular septal defect (AVSD) Cardiovascular Anomalies \ Cardiomegaly Cardiovascular Anomalies \ Coarctation of aorta Cardiovascular Anomalies \ Congenital heart block (complete and incomplete) Cardiovascular Anomalies \ Dextrocardia Cardiovascular Anomalies \ Discordant atrioventricular connection Cardiovascular Anomalies \ Double inlet ventricle (Single ventricle) Cardiovascular Anomalies \ Double outlet right ventricle (DORV) Cardiovascular Anomalies \ Ebstein anomaly Cardiovascular Anomalies \ Hypoplastic left heart (HLHS) Cardiovascular Anomalies \ Hypoplastic right heart (HRHS) Cardiovascular Anomalies \ Mitral valve atresia Cardiovascular Anomalies \ Mitral valve insufficiency Cardiovascular Anomalies \ Mitral valve stenosis Cardiovascular Anomalies \ Patent ductus arteriosus (PDA) - >37 weeks Cardiovascular Anomalies \ Patent/Persistent foramen ovale (PFO)/Premature closure of atrial septum Cardiovascular Anomalies \ Pericardial effusion Cardiovascular Anomalies \ Pulmonary valve atresia Cardiovascular Anomalies \ Pulmonary valve dysplasia Cardiovascular Anomalies \ Pulmonary valve stenosis Cardiovascular Anomalies \ Situs inversus (cardiac and abdominal) Cardiovascular Anomalies \ Tetralogy of Fallot (TOF) Cardiovascular Anomalies \ Total anomalous pulmonary venous connection (TAPVC)/Partial anomalous pulmonary venous connection (PAPVC) Cardiovascular Anomalies \ Transposition of great vessels (TGV) Cardiovascular Anomalies \ Tricuspid atresia/stenosis Cardiovascular Anomalies \ Tricuspid regurgitation Cardiovascular Anomalies \ Tricuspid valve dysplasia Cardiovascular Anomalies \ Truncus arteriosus (common arterial truncus) Cardiovascular Anomalies \ Vascular ring Cardiovascular Anomalies \ Vena cava, bilateral superior (SVC) Cardiovascular Anomalies \ Vena cava, interrupted inferior (IVC) Cardiovascular Anomalies \ Vena cava, persistent left superior (SVC) Cardiovascular Anomalies \ Ventricular disproportion (RV/LV discrepancy) Cardiovascular Anomalies \ Ventricular septal defect (VSD) Cardiovascular Anomalies \ Other cardiac malformations Abdominal Wall Defects \ Gastroschisis Abdominal Wall Defects \ Omphalocele (exomphalos) Abdominal Wall Defects \ Other - congenital malformations of abdominal wall Gastrointestinal & Abdominal Anomalies \ Abnormal stomach (including small/absent stomach) Gastrointestinal & Abdominal Anomalies \ Biliary atresia (atresia of bile ducts) Gastrointestinal & Abdominal Anomalies \ Bowel obstruction Gastrointestinal & Abdominal Anomalies \ Duodenal atresia/stenosis Gastrointestinal & Abdominal Anomalies \ Esophageal atresia (without fistula) Gastrointestinal & Abdominal Anomalies \ Esophageal atresia with tracheo-esophageal fistula (TEF) Gastrointestinal & Abdominal Anomalies \ Tracheoesophageal fistula (TEF) without esophageal atresia Gastrointestinal & Abdominal Anomalies \ Hirschsprung disease Gastrointestinal & Abdominal Anomalies \ Imperforate anus (congenital absence, atresia, stenosis of anus) Gastrointestinal & Abdominal Anomalies \ Large intestine atresia/stenosis Gastrointestinal & Abdominal Anomalies \ Pyloric stenosis Gastrointestinal & Abdominal Anomalies \ Rectal atresia/stenosis with/without fistula Gastrointestinal & Abdominal Anomalies \ Small bowel, abnormal Gastrointestinal & Abdominal Anomalies \ Small intestine atresia/stenosis (excluding duodenum) Gastrointestinal & Abdominal Anomalies \ Umbilical hernia Gastrointestinal & Abdominal Anomalies \ Other - malformations of gastrointestinal system Urinary Anomalies \ Bladder/cloacal exstrophy Urinary Anomalies \ Congenital hydronephrosis Urinary Anomalies \ Cystic kidneys - other Urinary Anomalies \ Duplex kidney/collecting system Urinary Anomalies \ Echogenic kidney(s) Urinary Anomalies \ Ectopic/pelvic kidney Urinary Anomalies \ Lower urinary tract obstruction Urinary Anomalies \ Megacystis Urinary Anomalies \ Megaureter Urinary Anomalies \ Multicystic dysplastic kidney(s) Urinary Anomalies \ Polycystic kidney, autosomal dominant Urinary Anomalies \ Polycystic kidney, autosomal recessive Urinary Anomalies \ Posterior urethral valves (PUV) Urinary Anomalies \ Prune belly Urinary Anomalies \ Renal agenesis - bilateral Urinary Anomalies \ Renal agenesis - unilateral Urinary Anomalies \ Renal cyst Urinary Anomalies \ Renal Dysplasia Urinary Anomalies \ Ureterocoele Urinary Anomalies \ Other - malformations of the urinary system Genital Anomalies \ Ambiguous genitalia/Indeterminate sex Genital Anomalies \ Cryptorchidism/undescended testicle(s) >37 weeks Genital Anomalies \ Epispadias Genital Anomalies \ Hydrocoele Genital Anomalies \ Hypospadias Genital Anomalies \ Other - malformations of female genitalia Genital Anomalies \ Other - malformations of male genitalia Skeletal & Limb Anomalies \ Adactyly (absent fingers/toes) Skeletal & Limb Anomalies \ Bowed/curved long bone(s) Skeletal & Limb Anomalies \ Club foot (talipes equinovarus) - bilateral Skeletal & Limb Anomalies \ Club foot (talipes equinovarus) - unilateral Skeletal & Limb Anomalies \ Congenital hip dislocation/dysplasia Skeletal & Limb Anomalies \ Craniosynostosis Skeletal & Limb Anomalies \ Ectrodactyly (lobster-claw/cleft hand) Skeletal & Limb Anomalies \ Hypotonia, unspecified Skeletal & Limb Anomalies \ Limb reduction defect - lower limb Skeletal & Limb Anomalies \ Limb reduction defect - upper limb Skeletal & Limb Anomalies \ Limb reduction defects of unspecified limb Skeletal & Limb Anomalies \ Osteogenesis imperfecta Skeletal & Limb Anomalies \ Polydactyly - feet Skeletal & Limb Anomalies \ Polydactyly - hands Skeletal & Limb Anomalies \ Skeletal dysplasia Skeletal & Limb Anomalies \ Syndactyly - feet Skeletal & Limb Anomalies \ Syndactyly - hands Skeletal & Limb Anomalies \ Congenital malformations of the musculoskeletal system Skeletal & Limb Anomalies \ Other - malformations of the spine & bony thorax (not including spina bifida) Skeletal & Limb Anomalies \ Other - malformations of the limb(s) Other Anomalies/Patterns/Syndromes \ Congenital constriction bands/amniotic bands Other Anomalies/Patterns/Syndromes \ Noonan syndrome/Rasopathies Other Anomalies/Patterns/Syndromes \ Pierre Robin Sequence Other Anomalies/Patterns/Syndromes \ Potter's syndrome/sequence Other Anomalies/Patterns/Syndromes \ Other - genetic syndrome Lymphatic Anomalies & Hydrops \ Cystic hygroma Lymphatic Anomalies & Hydrops \ Fetal ascites Lymphatic Anomalies & Hydrops \ Hydrops fetalis Lymphatic Anomalies & Hydrops \ Increased nuchal translucency (>= 3.5 mm) Lymphatic Anomalies & Hydrops \ Pleural effusion(s) (hydrothorax) Chromosomal Anomalies \ 22Q11.2 deletion syndrome/DiGeorge syndrome Chromosomal Anomalies \ 47, XYY Chromosomal Anomalies \ Down syndrome/Trisomy 21 Chromosomal Anomalies \ Edwards syndrome/Trisomy 18 Chromosomal Anomalies \ Klinefelter syndrome (47, XXY) Chromosomal Anomalies \ Patau syndrome/Trisomy 13 Chromosomal Anomalies \ Triple X syndrome (47, XXX) Chromosomal Anomalies \ Triploidy/polyploidy Chromosomal Anomalies \ Turner syndrome (45, X) Chromosomal Anomalies \ Chromosome abnormality - other Skin/Hair/Nails \ Congenital Ichthyosis Skin/Hair/Nails \ Cutis Aplasia Skin/Hair/Nails \ Epidermolysis Bullosa Skin/Hair/Nails \ Other - congenital malformations of skin Skin/Hair/Nails \ Other - congenital malformations of hair Skin/Hair/Nails \ Other - congenital malformations of nails Twins \ Acardiac Twin (TRAP Sequence) Twins \ Conjoined twins Twins \ Selective Intrauterine Growth Restriction (sIUGR) Twins \ Twin anemia polycythemia (TAPS) Twins \ Twin-twin transfusion syndrome (TTTS) Twins \ Other - malformation(s) of twins Other/Unknown \ Unknown Other/Unknown \ Other Congenital Malformations, Not Elsewhere Classified
D0025ICD	Newborn Congenital Anomalies Confirmed	Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
Data Definition: Identify all confirmed/diagnosed congenital anomalies; include treated and untreated. Pick List Value: None Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Absent cavum septum pellucidum (CSP) Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Absent cerebellar vermis Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Acrania or Anencephaly Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Arachnoid cyst(s) Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Arnold Chiari Malformation Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Aqueductal stenosis Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Corpus Callosum - Agenesis (ACC) Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Corpus Callosum - Hypoplasia Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Dandy walker malformation/ variant (DWM) Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Encephalocele Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Enlarged cisterna magna Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Holoprosencephaly Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Hydrocephalus Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Hypotonia, unspecified Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Lissencephaly Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Macrocephaly Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Microcephaly Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Polymicrogyria Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Posterior fossa cyst Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Sacral agenesis Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Sacrococcygeal teratoma (SCT) Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Seizures Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Spina Bifida with hydrocephalus Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Spina Bifida without hydrocephalus Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Ventriculomegaly - Mild-Moderate (11-14.9 mm) Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Ventriculomegaly - Severe (>15 mm) Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Other - malformations of the nervous system Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Other - malformations of the brain Eye Anomalies \ Anophthalmos Eye Anomalies \ Congenital cataract Eye Anomalies \ Congenital glaucoma Eye Anomalies \ Microphthalmos Eye Anomalies \ Other - malformations of eye Ear, Face and Neck Anomalies \ Choanal atresia Ear, Face and Neck Anomalies \ Ears - Anotia Ear, Face and Neck Anomalies \ Ears - Microtia Ear, Face and Neck Anomalies \ Macroglossia Ear, Face and Neck Anomalies \ Micrognathia Ear, Face and Neck Anomalies \ Nose - Absent Ear, Face and Neck Anomalies \ Nose - Hypoplastic Ear, Face and Neck Anomalies \ Retrognathia Ear, Face and Neck Anomalies \ Other - malformations of ear Ear, Face and Neck Anomalies \ Other - malformations of the face and neck Oro-facial Clefts \ Cleft lip Oro-facial Clefts \ Cleft lip with cleft palate Oro-facial Clefts \ Cleft palate Oro-facial Clefts \ Pierre Robin Sequence Thorax Anomalies \ Bronchopulmonary sequestration (BPS) Thorax Anomalies \ Congenital high airway obstruction (CHAOS) Thorax Anomalies \ Cystic adenomatous malformation of lung (CCAM) Thorax Anomalies \ Diaphragmatic hernia (CDH) Thorax Anomalies \ Other - congenital malformations of lung Thorax Anomalies \ Other - malformations of the diaphragm Cardiovascular Anomalies \ Aortic arch - Double Cardiovascular Anomalies \ Aortic arch - Interrupted Cardiovascular Anomalies \ Aortic arch - Right Cardiovascular Anomalies \ Aortic atresia/Hypoplastic aortic arch Cardiovascular Anomalies \ Aortic valve stenosis Cardiovascular Anomalies \ Arrhythmia Cardiovascular Anomalies \ Atrial isomerism (heterotaxy) - Left Cardiovascular Anomalies \ Atrial isomerism (heterotaxy) - Right Cardiovascular Anomalies \ Atrial septal defect (ASD) Cardiovascular Anomalies \ Atrioventricular septal defect (AVSD) Cardiovascular Anomalies \ Cardiomegaly Cardiovascular Anomalies \ Coarctation of aorta Cardiovascular Anomalies \ Congenital heart block (complete and incomplete) Cardiovascular Anomalies \ Dextrocardia Cardiovascular Anomalies \ Discordant atrioventricular connection Cardiovascular Anomalies \ Double inlet ventricle (Single ventricle) Cardiovascular Anomalies \ Double outlet right ventricle (DORV) Cardiovascular Anomalies \ Ebstein anomaly Cardiovascular Anomalies \ Hypoplastic left heart (HLHS) Cardiovascular Anomalies \ Hypoplastic right heart (HRHS) Cardiovascular Anomalies \ Mitral valve atresia Cardiovascular Anomalies \ Mitral valve insufficiency Cardiovascular Anomalies \ Mitral valve stenosis Cardiovascular Anomalies \ Patent ductus arteriosus (PDA) - >37 weeks Cardiovascular Anomalies \ Patent/Persistent foramen ovale (PFO)/Premature closure of atrial septum Cardiovascular Anomalies \ Pericardial effusion Cardiovascular Anomalies \ Pulmonary valve atresia Cardiovascular Anomalies \ Pulmonary valve dysplasia Cardiovascular Anomalies \ Pulmonary valve stenosis Cardiovascular Anomalies \ Situs inversus (cardiac and abdominal) Cardiovascular Anomalies \ Tetralogy of Fallot (TOF) Cardiovascular Anomalies \ Total anomalous pulmonary venous connection (TAPVC)/Partial anomalous pulmonary venous connection (PAPVC) Cardiovascular Anomalies \ Transposition of great vessels (TGV) Cardiovascular Anomalies \ Tricuspid atresia/stenosis Cardiovascular Anomalies \ Tricuspid regurgitation Cardiovascular Anomalies \ Tricuspid valve dysplasia Cardiovascular Anomalies \ Truncus arteriosus (common arterial truncus) Cardiovascular Anomalies \ Vascular ring Cardiovascular Anomalies \ Vena cava, bilateral superior (SVC) Cardiovascular Anomalies \ Vena cava, interrupted inferior (IVC) Cardiovascular Anomalies \ Vena cava, persistent left superior (SVC) Cardiovascular Anomalies \ Ventricular disproportion (RV/LV discrepancy) Cardiovascular Anomalies \ Ventricular septal defect (VSD) Cardiovascular Anomalies \ Other cardiac malformations Abdominal Wall Defects \ Gastroschisis Abdominal Wall Defects \ Omphalocele (exomphalos) Abdominal Wall Defects \ Other - congenital malformations of abdominal wall Gastrointestinal & Abdominal Anomalies \ Abnormal stomach (including small/absent stomach) Gastrointestinal & Abdominal Anomalies \ Biliary atresia (atresia of bile ducts) Gastrointestinal & Abdominal Anomalies \ Bowel obstruction Gastrointestinal & Abdominal Anomalies \ Duodenal atresia/stenosis Gastrointestinal & Abdominal Anomalies \ Esophageal atresia (without fistula) Gastrointestinal & Abdominal Anomalies \ Esophageal atresia with tracheo-esophageal fistula (TEF) Gastrointestinal & Abdominal Anomalies \ Tracheoesophageal fistula (TEF) without esophageal atresia Gastrointestinal & Abdominal Anomalies \ Hirschsprung disease Gastrointestinal & Abdominal Anomalies \ Imperforate anus (congenital absence, atresia, stenosis of anus) Gastrointestinal & Abdominal Anomalies \ Large intestine atresia/stenosis Gastrointestinal & Abdominal Anomalies \ Pyloric stenosis Gastrointestinal & Abdominal Anomalies \ Rectal atresia/stenosis with/without fistula Gastrointestinal & Abdominal Anomalies \ Small bowel, abnormal Gastrointestinal & Abdominal Anomalies \ Small intestine atresia/stenosis (excluding duodenum) Gastrointestinal & Abdominal Anomalies \ Umbilical hernia Gastrointestinal & Abdominal Anomalies \ Other - malformations of gastrointestinal system Urinary Anomalies \ Bladder/cloacal exstrophy Urinary Anomalies \ Congenital hydronephrosis Urinary Anomalies \ Cystic kidneys - other Urinary Anomalies \ Duplex kidney/collecting system Urinary Anomalies \ Echogenic kidney(s) Urinary Anomalies \ Ectopic/pelvic kidney Urinary Anomalies \ Lower urinary tract obstruction Urinary Anomalies \ Megacystis Urinary Anomalies \ Megaureter Urinary Anomalies \ Multicystic dysplastic kidney(s) Urinary Anomalies \ Polycystic kidney, autosomal dominant Urinary Anomalies \ Polycystic kidney, autosomal recessive Urinary Anomalies \ Posterior urethral valves (PUV) Urinary Anomalies \ Prune belly Urinary Anomalies \ Renal agenesis - bilateral Urinary Anomalies \ Renal agenesis - unilateral Urinary Anomalies \ Renal cyst Urinary Anomalies \ Renal Dysplasia Urinary Anomalies \ Ureterocoele Urinary Anomalies \ Other - malformations of the urinary system Genital Anomalies \ Ambiguous genitalia/Indeterminate sex Genital Anomalies \ Cryptorchidism/undescended testicle(s) >37 weeks Genital Anomalies \ Epispadias Genital Anomalies \ Hydrocoele Genital Anomalies \ Hypospadias Genital Anomalies \ Other - malformations of female genitalia Genital Anomalies \ Other - malformations of male genitalia Skeletal & Limb Anomalies \ Adactyly (absent fingers/toes) Skeletal & Limb Anomalies \ Bowed/curved long bone(s) Skeletal & Limb Anomalies \ Club foot (talipes equinovarus) - bilateral Skeletal & Limb Anomalies \ Club foot (talipes equinovarus) - unilateral Skeletal & Limb Anomalies \ Congenital hip dislocation/dysplasia Skeletal & Limb Anomalies \ Craniosynostosis Skeletal & Limb Anomalies \ Ectrodactyly (lobster-claw/cleft hand) Skeletal & Limb Anomalies \ Hypotonia, unspecified Skeletal & Limb Anomalies \ Limb reduction defect - lower limb Skeletal & Limb Anomalies \ Limb reduction defect - upper limb Skeletal & Limb Anomalies \ Limb reduction defects of unspecified limb Skeletal & Limb Anomalies \ Osteogenesis imperfecta Skeletal & Limb Anomalies \ Polydactyly - feet Skeletal & Limb Anomalies \ Polydactyly - hands Skeletal & Limb Anomalies \ Skeletal dysplasia Skeletal & Limb Anomalies \ Syndactyly - feet Skeletal & Limb Anomalies \ Syndactyly - hands Skeletal & Limb Anomalies \ Congenital malformations of the musculoskeletal system Skeletal & Limb Anomalies \ Other - malformations of the spine & bony thorax (not including spina bifida) Skeletal & Limb Anomalies \ Other - malformations of the limb(s) Other Anomalies/Patterns/Syndromes \ Congenital constriction bands/amniotic bands Other Anomalies/Patterns/Syndromes \ Noonan syndrome/Rasopathies Other Anomalies/Patterns/Syndromes \ Pierre Robin Sequence Other Anomalies/Patterns/Syndromes \ Potter's syndrome/sequence Other Anomalies/Patterns/Syndromes \ Other - genetic syndrome Lymphatic Anomalies & Hydrops \ Cystic hygroma Lymphatic Anomalies & Hydrops \ Fetal ascites Lymphatic Anomalies & Hydrops \ Hydrops fetalis Lymphatic Anomalies & Hydrops \ Increased nuchal translucency (>= 3.5 mm) Lymphatic Anomalies & Hydrops \ Pleural effusion(s) (hydrothorax) Chromosomal Anomalies \ 22Q11.2 deletion syndrome/DiGeorge syndrome Chromosomal Anomalies \ 47, XYY Chromosomal Anomalies \ Down syndrome/Trisomy 21 Chromosomal Anomalies \ Edwards syndrome/Trisomy 18 Chromosomal Anomalies \ Klinefelter syndrome (47, XXY) Chromosomal Anomalies \ Patau syndrome/Trisomy 13 Chromosomal Anomalies \ Triple X syndrome (47, XXX) Chromosomal Anomalies \ Triploidy/polyploidy Chromosomal Anomalies \ Turner syndrome (45, X) Chromosomal Anomalies \ Chromosome abnormality - other Skin/Hair/Nails \ Congenital Ichthyosis Skin/Hair/Nails \ Cutis Aplasia Skin/Hair/Nails \ Epidermolysis Bullosa Skin/Hair/Nails \ Other - congenital malformations of skin Skin/Hair/Nails \ Other - congenital malformations of hair Skin/Hair/Nails \ Other - congenital malformations of nails Twins \ Acardiac Twin (TRAP Sequence) Twins \ Conjoined twins Twins \ Selective Intrauterine Growth Restriction (sIUGR) Twins \ Twin anemia polycythemia (TAPS) Twins \ Twin-twin transfusion syndrome (TTTS) Twins \ Other - malformation(s) of twins Other/Unknown \ Unknown Other/Unknown \ Other Congenital Malformations, Not Elsewhere Classified
D0044	Person Transfer From	Labour & Birth Mother (LBM), Postpartum Child (PPC), Postpartum Mother (PPM)
This variable is available for release but with restriction or approval from appropriate stakeholder. Data Definition: Indicate the location where intrapartum care took place immediately before this admission/midwifery visit. If no care was provided directly before this encounter, select “No Transfer”. Pick List Value: No transfer Hospital - Name Planned Home or Clinic Birth Nursing Station Birth Centre Other unit, same hospital Other Home
D0116	Neonatal Transfer Hospital From	Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
This data element is available for request but because it's a quasi-identifier it can make the individual more unique in the population and hence easier to re-identify especially in combination with other variables. Categories/generalization and/or suppression might be necessary. Data Definition: Select the name of the facility (outside your hospital) where the infant was transferred from. Pick List Value:
D0152	Neonatal Health Conditions	Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
Data Definition: Indicate the disease process(es) or condition(s) diagnosed in your unit. Pick List Value: None Failed CCHD screening Hyperbilirubinemia Hypoglycemia Neonatal abstinence syndrome (NAS) Patent Ductus Arteriosus \ PDA present not treated Patent Ductus Arteriosus \ PDA treated pharmacologically Patent Ductus Arteriosus \ PDA treated with ligation Pneumothorax \ Pneumothorax not treated Pneumothorax \ Pneumothorax treated with Chest Tube Pneumothorax \ Pneumothorax treated with Needle Paracentesis Pneumothorax \ Pneumothorax treated with 100% Oxygen Hypoxic Ischemic Encephalopathy (HIE) \ Stage 1 Hypoxic Ischemic Encephalopathy (HIE) \ Stage 2 Other Hypoxic Ischemic Encephalopathy (HIE) \ Stage 3 Unknown Hypoxic Ischemic Encephalopathy (HIE) \ Stage Unknown Seizures \ Suspected seizures not treated Seizures \ Suspected seizures treated pharmacologically Seizures \ Suspected seizures, treatment unknown Seizures \ Confirmed seizures not treated Seizures \ Confirmed seizures treated pharmacologically Seizures \ Confirmed seizures, treatment unknown Respiratory \ Apnea Respiratory \ Aspiration of meconium (Meconium Aspiration Syndrome=MAS) Respiratory \ Aspiration of milk and regurgitated food Respiratory \ Bronchopulmonary Disease - Mild Respiratory \ Bronchopulmonary Disease - Moderate/Severe Respiratory \ Pneumomediastinum Respiratory \ Pneumonia Respiratory \ Pneumopericardium Respiratory \ Pulmonary edema Respiratory \ Pulmonary haemorrhage Respiratory \ Pulmonary Interstitial Emphysema (PIE) Respiratory \ Respiratory distress syndrome Respiratory \ Respiratory distress, unspecified (not RDS) Cardiovascular Conditions \ Anemia Cardiovascular Conditions \ Arrythmia Cardiovascular Conditions \ Cardiomyopathy Cardiovascular Conditions \ Coagulopathy but not DIC Cardiovascular Conditions \ Coagulopathy due to Disseminated intravascular coagulation Cardiovascular Conditions \ Fetal blood loss, other Cardiovascular Conditions \ Hemorrhage into co-twin (Twin to Twin transfusion) Cardiovascular Conditions \ Hemorrhage into maternal circulation Cardiovascular Conditions \ Hemorrhagic disease due to cause other than Vitamin K Deficiency Cardiovascular Conditions \ Hemorrhagic disease due to Vitamin K Deficiency Cardiovascular Conditions \ Hypertension (BP) Cardiovascular Conditions \ Hypotension (BP) Cardiovascular Conditions \ Persistent pulmonary hypertension (PPHN) Cardiovascular Conditions \ Portal vein thrombosis Cardiovascular Conditions \ Thrombocytopenia Gastrointestinal Conditions \ Acquired Stricture post NEC Gastrointestinal Conditions \ Gastroesophageal reflux disease Gastrointestinal Conditions \ Intestinal obstruction Gastrointestinal Conditions \ Intestinal perforation-Spontaneous Gastrointestinal Conditions \ Meconium ileus Gastrointestinal Conditions \ NEC-suspected without pneumatosis Gastrointestinal Conditions \ NEC Stage II-confirmed with pneumatosis Gastrointestinal Conditions \ NEC Stage III-confirmed with pneumatosis & perforation Sepsis \ Positive Blood Culture Sepsis \ Suspected Sepsis (culture negative) Sepsis \ Culture positive lower respiratory tract infection Sepsis \ Culture positive upper respiratory tract infection Sepsis \ Culture positive skin/soft tissue infection Sepsis \ Culture positive urinary infections Sepsis \ Congenital CMV infection Sepsis \ Congenital herpes viral (herpes simplex) infection Sepsis \ Congenital rubella syndrome Sepsis \ Congenital toxoplasmosis Sepsis \ Positive CSF culture (meningitis) Other Health Conditions \ Dehydration Other Health Conditions \ Fever Other Health Conditions \ Hemolytic disease due to ABO incompatibility Other Health Conditions \ Hemolytic disease due to Rh incompatibility Other Health Conditions \ Hemolytic diseases of fetus and newborn, other Other Health Conditions \ Hydrocele Other Health Conditions \ Hydrops fetalis due to isoimmunization Other Health Conditions \ Hydrops fetalis due to other and unspecified haemolytic disease Other Health Conditions \ Hyperglycemia (Gluc) Other Health Conditions \ Hyperkalemia (K) Other Health Conditions \ Hypernatremia (Na) Other Health Conditions \ Hypertonia Other Health Conditions \ Hypokalemia (K) Other Health Conditions \ Hyponatremia (Na) Other Health Conditions \ Hypothermia (Temp) Other Health Conditions \ Hypotonia Other Health Conditions \ Inguinal hernia Other Health Conditions \ Intrauterine Growth Restriction (IUGR) Other Health Conditions \ Neutropenia Other Health Conditions \ Osteopenia of prematurity Other Health Conditions \ Renal failure Other Health Conditions \ Umbilical hernia Other Health Conditions \ Vocal cord palsy CNS \ CNS \| IVH Blood in germinal matrix (grade 1) CNS \ CNS \| IVH Blood in ventricles (grade 2) CNS \ CNS \| IVH Ventricular enlargement (grade 3) CNS \ CNS \| IVH Intraparenchymal lesion (grade 4) CNS \ CNS \| PVL periventricular leukomalacia Respiratory \ Transient tachypnea of newborn
FAN0029	Neonatal Transfer Hospital To	Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
This data element is available for request but because it's a quasi-identifier it can make the individual more unique in the population and hence easier to re-identify especially in combination with other variables. Categories/generalization and/or suppression might be necessary. Data Definition: The name of the facility (outside your hospital) where the infant was transferred. Pick List Value:
FAN0100	Venous cord blood base excess / deficit	Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
Data Definition: Indicate results of venous umbilical cord blood sampling indicating base excess or deficit reported by birth hospital. Pick List Value:
FAN0101	Venous cord blood pH	Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
Data Definition: Indicate results of venous umbilical cord blood pH as reported by birth hospital. If results include '<' enter the next lowest value to one decimal place. Pick List Value:
FAN0102	Arterial cord blood base excess / deficit	Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
Data Definition: Results of arterial umbilical cord blood sampling indicating base excess or deficit as reported by birth hospital. Pick List Value:
FAN0103	Arterial Cord Blood pH	Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
Data Definition: Results of arterial umbilical cord blood pH as reported by birth hospital. Pick List Value:
M0503	Type of Birth (Calculated)	Birth Child (BC), Labour & Birth Mother (LBM), Postpartum Child (PPC), Postpartum Mother (PPM)
Data Definition: When entering Type of Birth in the maternal encounters in the event of multiple births, enter the highest intervention. On the child encounters, enter the actual Type of Birth for each infant. Pick List Value: Cesarean birth Vaginal birth
M0532	MW - EMS Attend Home	Birth Child (BC), Postpartum Child (PPC), Postpartum Mother (PPM)
Data Definition: Indication that Emergency Medical Services were called to home during pregnancy, intrapartum or immediate post-partum period. Pick List Value:
M4582	Type of Birth	Birth Child (BC), Labour & Birth Mother (LBM), Postpartum Child (PPC), Postpartum Mother (PPM)
Data Definition: Indicates vaginal or cesarean birth. Pick List Value: Vaginal Birth Cesarean Birth
MW001564	MW - Is the newborn in midwifery care	Birth Child (BC), Postpartum Child (PPC)
Data Definition: Indicates whether the infant is in midwifery care. Pick List Value:
MW0019	MW - Infant Consult	Birth Child (BC), Postpartum Child (PPC)
Data Definition: MW - Infant Consult Pick List Value:
MW0059	MW - Infant Reason for Consult	Birth Child (BC), Postpartum Child (PPC)
Data Definition: List of Infant conditions or complications resulting in consultation with physician and/or transfer of care and/or use of hospital services. Pick List Value: Birth weight < 2500 g Cardiac conditions Findings on newborn physical exam Followup related to prenatal tests/screens Hypoglycemia Meconium Aspiration NAS - Neonatal Abstinence Syndrome Preterm infant Respiratory conditions Neonatal Birth Complication \ Brachial plexus injury Neonatal Birth Complication \ Caput succedaneum Neonatal Birth Complication \ Cephalohematoma Neonatal Birth Complication \ Clavicular fracture Neonatal Birth Complication \ Facial nerve injury Neonatal Birth Complication \ Birth injury - other Other, specify: Abnormal Newborn Blood Spot Screen Ankyloglossia Dehydration Feeding issues Hyperbilirubinemia Hyperbilirumenemia requiring treatment Infection Weight loss >10%
MW0059A	MW - Infant Reason for Consult All	Birth Child (BC), Postpartum Child (PPC)
Data Definition: Pick List Value: Birth weight < 2500 g Cardiac conditions Findings on newborn physical exam Followup related to prenatal tests/screens Hypoglycemia Meconium Aspiration NAS - Neonatal Abstinence Syndrome Preterm infant Respiratory conditions Neonatal Birth Complication \ Brachial plexus injury Neonatal Birth Complication \ Caput succedaneum Neonatal Birth Complication \ Cephalohematoma Neonatal Birth Complication \ Clavicular fracture Neonatal Birth Complication \ Facial nerve injury Neonatal Birth Complication \ Birth injury - other Other, specify: Abnormal Newborn Blood Spot Screen Ankyloglossia Dehydration Feeding issues Hyperbilirubinemia Hyperbilirumenemia requiring treatment Infection Weight loss >10%
MW0060	MW - Infant Transfer of Care Returned	Birth Child (BC), Postpartum Child (PPC)
Data Definition: When the infant's care is transferred back to the midwife. Pick List Value:
MW0068	MW - Infant Transfer of Care	Birth Child (BC), Postpartum Child (PPC)
Data Definition: For each listed infant condition or complication, indicates if there was a transfer from midwifery care. Pick List Value:
MW0071	MW - Newborn Feeding at Discharge from Care	Postpartum Child (PPC)
Data Definition: Indication of infant feeding at time of client discharge from midwifery care. "At discharge from midwifery care" is greater than 5 weeks postpartum. Pick List Value: Breast Milk Only Combination of breast milk and breast milk substitute Breast milk substitute - Formula only Breast milk substitute - Other None Not applicable, discharged earlier than 5 weeks Unknown
MW0100	MW - Consult/Transfer of Care/Emergency Flag	Antenatal General (AG), Birth Child (BC), Labour & Birth Mother (LBM), Postpartum Child (PPC), Postpartum Mother (PPM)
Data Definition: Indicates if there were there any consults, transfers of care, or use of hospital/outpatient/emergency services during that period. Pick List Value:
MW0102	MW - Infant Consult Reason Other	Birth Child (BC), Postpartum Child (PPC)
Data Definition: Other infant condition or complication Pick List Value:
MW0105	MW - Consult Reason Comments	Antenatal General (AG), Birth Child (BC), Labour & Birth Mother (LBM), Postpartum Child (PPC), Postpartum Mother (PPM)
BORN collects this variable but due to personal health information (PHI) or sensitivity it is not available for data request. Data Definition: Comments about the reason for the consult, transfer of care or the use of hospital/outpatient/emergency services. Pick List Value:
MW0107	MW - Neonatal Transport to Hospital Flag	Birth Child (BC), Postpartum Child (PPC)
Data Definition: Indicates if infant was transported to hospital in the postpartum period, defined as 1 hour post-birth to discharge from midwifery care. Pick List Value:
MW0108	MW - Reason(s) for Transport	Birth Child (BC), Postpartum Child (PPC), Postpartum Mother (PPM)
Data Definition: Clinical indication(s) for transport to hospital. Pick List Value: Respiratory distress Maternal clinical indication Other neonatal clinical indication Other Postpartum hemorrhage Repair of laceration Other maternal clinical indication Neonatal clinical indication
MW0109	MW - Primary Reason for Transport	Birth Child (BC), Postpartum Child (PPC), Postpartum Mother (PPM)
Data Definition: Primary reason for transport to hospital, chosen from the list of reason(s) for transport. Pick List Value: Respiratory distress Maternal clinical indication Other neonatal clinical indication Other Postpartum hemorrhage Repair of laceration Other maternal clinical indication Neonatal clinical indication
MW0111	MW - EMS Transport Flag	Birth Child (BC), Postpartum Child (PPC), Postpartum Mother (PPM)
Data Definition: Indicates if Emergency Medical Services (EMS) was required for transport to hospital. Pick List Value:
MW0112	MW - EMS Transport Barrier	Birth Child (BC), Postpartum Child (PPC), Postpartum Mother (PPM)
Data Definition: Any barrier to transport by Emergency Medical Services (EMS). Pick List Value: None Delayed arrival time of EMS Delayed departure of EMS Delay on route Other
MW0119	Was newborn admitted to hospital for a complication in the postpartum period, after approximately 1-hour post-birth (NOT immediate postpartum)?	Postpartum Child (PPC)
Data Definition: Indicates if the newborn was admitted to hospital for a complication in the postpartum period, defined as after approximately 1 hour post-birth to discharge from midwifery care. Pick List Value:
MW4465	Was rationale for transfer of care due to hospital/physician protocol?	Antenatal General (AG), Birth Child (BC), Labour & Birth Mother (LBM), Postpartum Child (PPC), Postpartum Mother (PPM)
Data Definition: There are multiple reasons why a midwife may choose to transfer care, including midwifery judgement, scope of practice limitations as defined by the midwifery regulatory body, and hospital/physician protocol. Was this consultation/transfer of care ONLY because of hospital/physician protocol? Pick List Value:
MW4466	Was rationale for consult due to hospital/physician protocol?	Antenatal General (AG), Birth Child (BC), Labour & Birth Mother (LBM), Postpartum Child (PPC), Postpartum Mother (PPM)
Data Definition: There are multiple reasons why a midwife may choose to consult, including midwifery judgement, scope of practice limitations as defined by the midwifery regulatory body, and hospital/physician protocol. Was this consultation/transfer of care ONLY because of hospital/physician protocol? Pick List Value:
MWPM011	MW - Was care of client transferred back to midwifery	Birth Child (BC), Labour & Birth Mother (LBM), Postpartum Child (PPC), Postpartum Mother (PPM)
Data Definition: Pick List Value:
MWUNRETC	MW - Unreturned Transfer of Care	Antenatal General (AG), Birth Child (BC), Labour & Birth Mother (LBM), Postpartum Child (PPC), Postpartum Mother (PPM)
Data Definition: Pick List Value:
N0002	Newborn Date of Birth	Birth Child (BC), Healthy Babies Healthy Children (HBHC), Labour & Birth Mother (LBM), Newborn Screening Ontario (NSO), Postpartum Child (PPC), Postpartum Mother (PPM)
This variable is available for release but with restriction or approval from appropriate stakeholder. Data Definition: Infant date of birth (day/month/year). Pick List Value:
N0005	Birth Location	Birth Child (BC), Healthy Babies Healthy Children (HBHC), Labour & Birth Mother (LBM), Newborn Screening Ontario (NSO), Neonatal Intensive Care Unit (NICU), NSO Diagnostic Evaluation Report Form (DERF), Postpartum Child (PPC), Postpartum Mother (PPM)
This variable is available for release but with restriction or approval from appropriate stakeholder. Data Definition: Location where the birth occurred (hospital, home, other, etc.). Pick List Value: Hospital Home Birth Centre Clinic (Midwifery) Nursing Station Other Ontario location Outside of Ontario
N0012	Birth Weight	Birth Child (BC), Healthy Babies Healthy Children (HBHC), Newborn Screening Ontario (NSO), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
This variable is available for release but with restriction or approval from appropriate stakeholder. Data Definition: Infant birth weight (grams). Pick List Value:
N0012NO	Birth Weight Is Unknown	Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
Data Definition: Infant birth weight is not known. Pick List Value:
N0014	Gestational Age at Birth (weeks+days; calculated using EDB and DOB)	Birth Child (BC), Healthy Babies Healthy Children (HBHC), Labour & Birth Mother (LBM), Newborn Screening Ontario (NSO), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
This variable is available for release but with restriction or approval from appropriate stakeholder. Data Definition: Infant's gestational age at the time of birth calculated using "Estimated Date of Birth" and "Newborn Date of Birth" data elements in weeks and days. Pick List Value:
N0017	Newborn Feeding - 3 days	Postpartum Child (PPC)
Data Definition: Type of feeding at 72 hours following birth Pick List Value: Breast Milk Only Combination of breast milk and breast milk substitute Breast milk substitute - Formula only Breast milk substitute - Other None Not applicable, discharged earlier than 5 weeks Unknown
N0018	MW - Newborn Feeding - 10 days	Postpartum Child (PPC)
Data Definition: Indication of infant feeding at 10 days postpartum. "At 10 days" includes all the time between 3 days postpartum and up to 4 weeks. Pick List Value: Breast Milk Only Combination of breast milk and breast milk substitute Breast milk substitute - Formula only Breast milk substitute - Other None Not applicable, discharged earlier than 5 weeks Unknown
N0020	Reason For Breast Milk Substitute	Postpartum Child (PPC)
Data Definition: Indicates the reason why newborn received any breast milk substitute while in hospital. Breast milk substitute refers to any food used as a partial or total replacement for human (mother’s or donor's) breast milk. Pick List Value: Infant Medical \ Hypoglycemia Infant Medical \ Inadequate Weight Gain Infant Medical \ Inborn Errors of Metabolism Infant Medical \ Significant weight loss in the presence of clinical indications Infant Medical \ Other clinical indications Maternal Medical \ Active herpes on breast Maternal Medical \ Additional Health Concerns Maternal Medical \ Contraindicated maternal medication Maternal Medical \ HIV infection Maternal Medical \ Severe maternal illness Donor milk not available Informed Parent Decision to use any Breast Milk Substitute Insufficient maternal milk supply Birth mother not involved in care Not eligible for donor milk Unknown
N0021	Neonatal Birth Complications	Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
Data Definition: All complications and/or conditions noted at the time of birth of the infant. Pick List Value: None Brachial plexus injury Cephalohematoma Clavicular fracture Facial nerve injury Fracture – other Palsy – other Other birth injury Unknown Intracranial hemorrhage
N0026	Newborn Hearing Screen Result	Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
Data Definition: The result of the Auditory Brainstem Response (ABR) or Distortion Product Otoacoustic Emission (DPOAE) newborn hearing screen test done during the hospital stay Pick List Value: Inconclusive/no result Not done Pass Referral Referred to community Unknown
N0043	Phototherapy	Postpartum Child (PPC)
Data Definition: Indicate whether the newborn received phototherapy for the treatment of hyperbilirubinemia (jaundice) during this hospital stay. Pick List Value:
N0044	Newborn Feeding From Birth to Discharge from Hospital or Birth Centre	Postpartum Child (PPC)
Data Definition: The type of oral feeding given to the newborn from the time of birth to discharge from hospital or birth centre. Select the one pick list value that represents all feeding types for your organization. Pick List Value: Breast Milk Only Combination of breast milk and breast milk substitute Breast milk substitute - Formula only Breast milk substitute - Other None Not applicable, discharged earlier than 5 weeks Unknown
N0052	Discharge Weight	Healthy Babies Healthy Children (HBHC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
Data Definition: Indicate baby weight at discharge (grams). Enter 0 if weight is unknown. Pick List Value:
N0053PPC	Infant Postpartum Length of Stay (Birth to Discharge)	Postpartum Child (PPC)
Data Definition: Neonatal Transfer Discharge date/time - Newborn date/time of birth Pick List Value:
N0054DT	Infant Discharge Date	Birth Child (BC), Healthy Babies Healthy Children (HBHC), Postpartum Child (PPC)
This data element is available for request but because it's a quasi-identifier it can make the individual more unique in the population and hence easier to re-identify especially in combination with other variables. Categories/generalization and/or suppression might be necessary. Data Definition: The day/month/year of infant discharge from hospital. Pick List Value:
N0054TM	Neonatal Transfer/Discharge Time	Birth Child (BC), Postpartum Child (PPC)
This data element is available for request but because it's a quasi-identifier it can make the individual more unique in the population and hence easier to re-identify especially in combination with other variables. Categories/generalization and/or suppression might be necessary. Data Definition: Time that the neonate was transferred or discharged from care/unit. Pick List Value:
N0057	MW - Infant Discharged with Mother	Labour & Birth Mother (LBM), Postpartum Child (PPC), Postpartum Mother (PPM)
Data Definition: For hospital births, indication of whether newborn was discharged with mother. Pick List Value:
N0060	Neonatal/Infant Death	Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
This data element is available for request but because it's a quasi-identifier it can make the individual more unique in the population and hence easier to re-identify especially in combination with other variables. Categories/generalization and/or suppression might be necessary. Data Definition: Indication of whether or not neonatal death occurred. While neonatal death technically only includes the first 28 days of life, includes infant death that occurs after that period, while in your care. Pick List Value: No Yes Yes-With Termination of Pregnancy
N0065	Newborn Discharged or Transferred To	Postpartum Child (PPC)
Data Definition: To track neonatal transfers and discharges Pick List Value: No Transfer Home Transfer to NICU, other hospital Transfer to NICU, same hospital Transfer to Paediatric unit, same hospital Transfer to other unit, same hospital Transfer to other Hospital Child and Family Services Apprehension
N0122	Percent weight loss/gain - Infant	Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
Data Definition: Calculation of newborn percentage of weight loss/gain at the time of discharge Pick List Value:
N0138	Neonatal/Infant Death Date	Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
This data element is available for request but because it's a quasi-identifier it can make the individual more unique in the population and hence easier to re-identify especially in combination with other variables. Categories/generalization and/or suppression might be necessary. Data Definition: Day/month/year of neonatal death. Pick List Value:
N0139	Neonatal/Infant Death Time	Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
This data element is available for request but because it's a quasi-identifier it can make the individual more unique in the population and hence easier to re-identify especially in combination with other variables. Categories/generalization and/or suppression might be necessary. Data Definition: Time (24 hour clock) of neonatal death. Pick List Value:
N0141	Age at Neonatal Death	Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
Data Definition: Calculated Age at Neonatal Death Pick List Value:
N0203	Pain relief measures during first blood sampling by heel prick	Postpartum Child (PPC)
Data Definition: Method(s) of pain management provided during heel prick for Newborn Screening, first serum bilirubin measurement, and/or other blood sampling. Pick List Value: Breastfeeding Skin-to-skin Sucrose Other No pain relief measures No heel prick sampling Unknown if pain relief was provided
N0204	Bilirubin Measured within 72 hours of Birth	Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
Data Definition: Indicate if Bilirubin was measured within 72 hours of birth. If TCB and TSB were used, select both. If baby is discharged from hospital and returns for testing within 72 hours, select “No – Newborn Transferred Out/Discharged” Pick List Value: Yes - Transcutaneous bilirubin (TCB) Yes - Total Serum Bilirubin (TSB) No - Newborn Transferred Out/Discharged No - Declined No - Reason Unknown No - Reason other Unknown
N0205	Hyperbilirubinemia Requiring Treatment	Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
Data Definition: Indicate whether hyperbilirubinemia required treatment Pick List Value:
N0206	Hyperbilirubinemia treatment	Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
Data Definition: Multi select. Indicate all methods of treatment the infant received for hyperbilirubinemia in your unit. Pick List Value: Phototherapy IVIG administration Exchange transfusion Treatment declined
N0207	Highest Serum Bilirubin >340 µmol/L	Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
Data Definition: Indicate whether highest serum bilirubin > 340 µmol/L Pick List Value:
N0208	Highest Serum Bilirubin >425 µmol/L	Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
Data Definition: Indicate whether highest serum bilirubin > 425 µmol/L Pick List Value:
N0500	Newborn Date of Admission	Postpartum Child (PPC)
This data element is available for request but because it's a quasi-identifier it can make the individual more unique in the population and hence easier to re-identify especially in combination with other variables. Categories/generalization and/or suppression might be necessary. Data Definition: Indicate day/month/year when newborn was admitted for postpartum care. Pick List Value:
N0500T	Newborn Time of Admission	Postpartum Child (PPC)
Data Definition: Indicate time (24 hour clock) when newborn was admitted for postpartum care. Pick List Value:
N4354	Consent for Use of Breast Milk Substitute	Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
Data Definition: Indicate whether or not there is evidence that consent for use of breast milk substitute was obtained from the parent. Consent can be in verbal or written form. Pick List Value: Evidence that consent was obtained No evidence of consent Unknown
N4545	Was glucose monitoring being done?	Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
Data Definition: Indicates if blood glucose monitoring via bedside monitoring (point-of-care) and/or laboratory analysis was being done according to the Canadian Pediatric Society's guidelines. Pick List Value:
N4546	Was Oral Dextrose/Gel given?	Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
Data Definition: Indicates if oral dextrose/gel was given to the infant for the purposes of stabilizing blood sugars. Pick List Value:
N4548	Blood Group and Type of Infant, ABO/Rh(D)	Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
Data Definition: Indicates the ABO blood group and the presence (+) or absence (-) of the Rh factor of the newborn/infant's blood (results can be obtained from baby or cord). Pick List Value: Not Collected/Unknown O+ O- A+ A- B+ B- AB+ AB-
N4565	Reason For Neonatal Transfer	Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
Data Definition: All reasons why the infant was transferred to the NICU. Pick List Value: Post Resuscitation Requires higher level of care Other Unknown Condition improved Keeping baby and mother together Lack of resources Repatriation/Care closer to home Transfer back to birth hospital
N5157	RSV mAb administered?	NICU, Postpartum Child
Data Definition: Indicates if the infant RSV monoclonal antibody was administered. Pick List Value:
N5158	Reason RSV mAb not given	NICU, Postpartum Child
Data Definition: Reason that the infant RSV monoclonal antibody was not given. Pick List Value: Infant born out of season Parents/guardian declined Received prenatal RSV vaccine >2 weeks before birth and infant NOT high-risk No supply available Not offered before discharge from care/missed opportunity Out of hospital birth/Midwives not authorized to administer Confirmed RSV infection Other, specify Unknown
N5158OTH	Reason RSV mAb not given, other	NICU, Postpartum Child
Data Definition: Reason that the infant RSV monoclonal antibody was not given. Pick List Value:
N5160	Date of RSV mAb administration	NICU, Postpartum Child
Data Definition: The date when the infant RSV monoclonal antibody was administered. Pick List Value:
N5161	Date of RSV mAb administration is Unknown	NICU, Postpartum Child
Data Definition: Indicates the date of the infant RSV monoclonal antibody is not known. Pick List Value:
N5162	Infant RSV product	NICU, Postpartum Child
Data Definition: Product name of the infant RSV product that was given. Pick List Value: Beyfortus (No dosage specified) Beyfortus (50 mg) Beyfortus (100 mg) Other, specify Unknown
N5162OTH	Infant RSV product, other	NICU, Postpartum Child
Data Definition: Product name of the infant RSV product that was given. Pick List Value:
N5164	Infant high-risk for RSV	NICU, Postpartum Child
Data Definition: Please provide definition Pick List Value: No Yes - Suspected or Confirmed Down Syndrome/Trisomy 21 Yes - Chronic lung disease of prematurity (CLD), including bronchopulmonary dysplasia/chronic lung disease Yes - Hemodynamically significant congenital heart disease (CHD) and/or moderate to severe pulmonary hypertension Yes - Cystic Fibrosis with respiratory involvement and/or growth delay Yes - Severe immunodeficiency Yes - Neuromuscular disease impairing clearing of respiratory secretions Yes - Severe congenital airway anomalies impairing the clearing of respiratory secretions Yes - Other Reason for second/subsequent dose, (immune status, risk of aspiration, hypotonic, etc.), specify Unknown
N5164OTH	Infant high-risk for RSV, Other	NICU, Postpartum Child
Data Definition: Reason(s) the infant is identified as high-risk and would require a second season dose. Pick List Value:

Postpartum Child

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